The singer’s sister offers a sad update on her health battle.
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The ‘My Heart Will Go On’ singer Dion was recently diagnosed with stiff person syndrome, which compelled her to postpone her global tour. Her sister, Claudette Dion, has provided an update on the singer’s condition.
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The 55-year-old Celine is being looked for by their sister Linda and collaborating closely with experts who specialise in the uncommon ailment, according to Claudette, who spoke to Le Journal de Montréal (via SheMazing).
She said last week, ‘We can’t find any medicine that works, but having hope is important.’
‘I honestly think that she mostly needs to rest. She always goes above and beyond [when performing], she always tries to be the best and top of her game.
‘At one point, your heart and your body are trying to tell you something. It’s important to listen to it.’
An incurable neurological disorder called stiff person syndrome causes uncontrolled muscular spasms. Only one person out of every million is impacted.
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The family ‘trusts’ that Celine will eventually discover a method of rehabilitation that will enable her to go back on stage since she has been ‘listening to the leading researchers in the field of this uncommon disease as much as possible’.
When news of Celine’s cancellation of her global tour due to health issues first surfaced in May, fans of the vocal superstar showed her tremendous support. Her scheduled performances had already been postponed after she made her condition public in December 2022.
Although there is no known therapy for stiff person syndrome, Celine claimed she is doing all in her power to lessen symptoms with this update on her social media.
‘I’m working hard with my sports medicine therapist every day to build back my strength and my ability to perform again but I have to admit it’s been a struggle.
‘All I know is singing, it’s what I’ve done all my life and it’s what I love to do the most.
In a recent update Claudette, Dion’s sister, spoke with Hello! about the family’s experiences, hopes, and struggles in living with Stiff Person Syndrome (SPS).
This autoimmune neurological illness produces muscular stiffness and painful spasms, frequently leaving people with symptoms like “human statues,” making everyday tasks like walking or talking difficult.
‘We are keeping our fingers crossed in the quest to find a remedy for Celine’s distressing ailment’ Claudette said of the family’s sincere worry for Dion’s well-being.
‘The spasms are uncontrollable, affecting all her muscles, much like an abrupt leg or calf cramp that people occasionally experience. There’s little we can do to ease her suffering’
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